Monday, August 18, 2008

some answers

We saw Dr. Rosenfeld this afternoon - she had the long sought after pathology report. To no one's surprise, the result is that the tumor is a recurrence. However, it is quite rare for adult glioma to leave the cranium and at some point during the conversation, she described this as a 'reportable case'. Good for her I guess?

HUP's treatment options are 1) Temodar again, at a lower dose but more intense regimen, meaning 21 days on, 7 days off for at least six months. 2) Weekly IV chemo, Avastin and Irinotecan. There weren't a lot of arguments either way except that Temodar will almost certainly be covered by my new medical insurance and will require less time in the hospital.

Other options include speaking with Glass at Jefferson again, who apparently has a radiation and chemo clinical trial they would consider me for and returning to follow the leads we have as Memorial Sloan-Kettering Cancer Center in Manhattan and National Institutes of Health in DC. All of these take more time, of course.

Rosenfeld's dreary news, delivered with typical aplomb, is that recurrences will happen and the time between them will decrease. I'd like to inject something hopeful and cheery here, but I'm fresh out of those. This sucks.

4 Comments:

Blogger bp said...

shit. i'm sorry jon

12:27 PM  
Blogger Margaret said...

Hi there.
This is brian's wife (in portland).
Just wanted to say, I'm sorry.
And, that's awful.
Just wanted to let you know someone else is reading your posts.
My heart goes out to you.
And, as always, you are in our thoughts. Hang tough!
Margaret

6:23 PM  
Blogger Way2Neurotic said...

Bummer dude.
Very sorry to hear that all.
I have new "flares" on my last MRI, and have a follow-up in 30 days. Very tiring.
My thots will be with you in the coming days.
I wish the best for you in this challenging time.

9:00 PM  
Anonymous JR said...

Hang in there cuz.

7:45 AM  

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