Waiting ... and waiting ...
So, 2 1/2 weeks after surgery and we're still waiting for the pathology report. We had the two week follow-up on August 7, this past Thursday. We really like the surgeon, Dr. Gausus and she says she's been speaking with the pathology lab every day this week but they don't have a conclusive diagnosis yet. At this point, they say it's malignant and she's pretty sure this is a recurrence which is part of why it's taking so long. The pathology lab at the Scheie Eye Institute, I guess, is not accustomed to identifying glioma so they are now working with the neuropathology ab at HUP. I'll probably be working with my current treatment team for the next step. I feel like, at least today, I've surrendered my expectations about what happens next and I'm feeling peaceful about when and how the pathology report comes in.
I was able to go to Earthdance for the Permaculture course the last weekof July. This was an amazing experience and a wonderful way to spend a week of recuperating from surgery. I learned a lot about how to work with Nature even in the City and am newly inspired for many projects at home.
I also started my new job this week. Under my lawyer's advice, I'm waiting to discuss my health situation with my employer until there's a clear impact on my responsibilities there. So, another opportunity to practice patience. By the time I started on Monday, August 4th my eye looked fairly 'normal' so I haven't had to explain my situation as I feared.
In the meantime, I've connected our new DTV tuner to Michelle's video projector and set it up to watch the olympics on the wall above the fireplace mantle. Today is perfect for that while we receive the blessings of a series of thunderstorms this afternoon. I plan on waging another battle with the poison ivy in between storms later but I'm watching rowing for now.
I was able to go to Earthdance for the Permaculture course the last weekof July. This was an amazing experience and a wonderful way to spend a week of recuperating from surgery. I learned a lot about how to work with Nature even in the City and am newly inspired for many projects at home.
I also started my new job this week. Under my lawyer's advice, I'm waiting to discuss my health situation with my employer until there's a clear impact on my responsibilities there. So, another opportunity to practice patience. By the time I started on Monday, August 4th my eye looked fairly 'normal' so I haven't had to explain my situation as I feared.
In the meantime, I've connected our new DTV tuner to Michelle's video projector and set it up to watch the olympics on the wall above the fireplace mantle. Today is perfect for that while we receive the blessings of a series of thunderstorms this afternoon. I plan on waging another battle with the poison ivy in between storms later but I'm watching rowing for now.
Labels: eye Earthdance Olympics

1 Comments:
hey jon -
i'm sorry you have to wait so long for pathology. when i was first diagnosed it was at xmas-time and everyone was on vacation. we had to wait 13 days between hearing 'you have a brain tumor' and being called by someone from neurology. it sucked real bad.
i'm more sorry you have to hear words like malignant and recurrence. Stay peaceful and strong.
best
brian
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