stumbling forward

No big news. Watching what is almost certainly the last game of the 2008 World Series which is happening in the chilly drizzle 15 miles south of this cozy spot on the sofa in front of the TV. What's with the towels?

I saw Dr. Lustig last week, my radiologist here in Philly. He was unsurprised to hear that no one so far thought that more radiation was a good idea for me. He seemed ambivalent about the possibility of proton beam radiation and pessimistic about actually being able to schedule treatment at Massachusetts General.

We all agreed that it's been too long and it's time to do something. Lustig recommended starting Temodar as soon as possible, after a baseline MRI. His office scheduled the MRI for me, this Thursday, October 30.

On the weekend, Michelle and I discussed this path some more. I'm still persuaded by Dr. Fine's reasnoning that the PC combination may be more effective for me and I'm interested in trying something new, but I'm not confident about the choice. This week, Michelle is in a week-long Butoh workshop so most of the phone calling is on me this week. I scheduled an appointment with my neurologist at HUP for Monday and I'm trying to find out from NIH if I can get Dr. Fine to prescribe the chemotherapy or at least advise me. In this uncoordinated way, we progress.