pick your poison
So, surgery came and went as did a lot of great food through our kitchen. And the entire (original) Star Wars trilogy on DVD and the 2 1/2 hour documentary on the features disc.
My right eye is a little pudgy and I have some double vision when I wake up and late at night. I think I might still have some grogginess from the anesthesia. Other than the activity restrictions, though, I feel pretty much like my usual self and I'm headed into the office again tomorrow, a week after surgery.
So we saw Dr. Rosenfeld again yesterday to talk about chemotherapy. We arrived thinking that we're just going to discuss the schedule for Avastin, but were surprised to hear her talking about CCNU (or Lomustine) instead. Apparently, due to possible blood-related issues with Avastin, I wouldn't be allowed to start it for another 3 weeks and we are all interested in getting things moving along.
Much of the visit was taken up with discussing the various possible side effects of each chemotherapy agent in consideration. Lomustine is linked to some sort of terrible lung disease, but only after several months. The idea is to get me started on it and then see if there's an effect on the tumor - if so, maybe we'll stay with it, which means 'baseline' pulmonary tests, or maybe we'll still go with the also-side-effect-laden-but-not-as-deadly Avastin.
Lomustine is oral and we left with a prescription for two 100mg and one 20mg tablets and a warning that not all pharmacies are likely to carry it. This advise was proven true when I called the CVS across the street and the pharmacist told me "I have no idea what you're talking about." when I asked how long it would take to fill my order. We went to the pharmacy at the hospital and, while they knew about it, they didn't have the prescribed doses in stock either. We ended up picking up my prescription from them anyway, this morning, filled with 22 10mg tablets.
The dose is effective for 6 - 8 weeks. It's taken on an empty stomach a half-hour after Zofran (anti-nausea). I took the Zofran at about 3:15 this afternoon and the Lomustine a little before 4. I don't feel any nausea and I've been able to eat a little, but I feel a little woozy, truth be told.
If all goes well with the Lomustine, there won't be much to report until mid-January. Here's to an uneventful December and Happy New Year for everyone!
My right eye is a little pudgy and I have some double vision when I wake up and late at night. I think I might still have some grogginess from the anesthesia. Other than the activity restrictions, though, I feel pretty much like my usual self and I'm headed into the office again tomorrow, a week after surgery.
So we saw Dr. Rosenfeld again yesterday to talk about chemotherapy. We arrived thinking that we're just going to discuss the schedule for Avastin, but were surprised to hear her talking about CCNU (or Lomustine) instead. Apparently, due to possible blood-related issues with Avastin, I wouldn't be allowed to start it for another 3 weeks and we are all interested in getting things moving along.
Much of the visit was taken up with discussing the various possible side effects of each chemotherapy agent in consideration. Lomustine is linked to some sort of terrible lung disease, but only after several months. The idea is to get me started on it and then see if there's an effect on the tumor - if so, maybe we'll stay with it, which means 'baseline' pulmonary tests, or maybe we'll still go with the also-side-effect-laden-but-not-as-deadly Avastin.
If all goes well with the Lomustine, there won't be much to report until mid-January. Here's to an uneventful December and Happy New Year for everyone!

3 Comments:
Cheers Jon! You and Michelle have been very much on my mind and I was so happy to read your update and hear how things are going. Congrats on being through with the surgery, and I have all digits crossed for an uneventful December and Happy New Year for you both!! Lots of love.
indeed, here's to a boring and mundane run of the mill december and beyond. cheers
bp
Uneventful sound wonderful!
Happy Holidays to you and Michelle.
Janine
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